Julie Rohr dies.
The Edmonton woman never hesitated to share the brutal, heartbreaking details of her battle with Leiomyosarcoma, a rare type of cancer that grows in smooth muscle.
But she has done so with courage, grace and transparency – detailing on social media the toll that her multiple surgeries, chemotherapy, radiation and other treatments have done since she was diagnosed in 2015.
A month ago, Rohr posted a video saying she would take a step back from Twitter after receiving bad news from her doctors: a trial drug she had been on did not work and after six years of ongoing treatments had exhausted her medical options war. She said it with a smile, in the optimistic yet realistic way for which she was known.
On September 1, after she was hospitalized, she shared as their new norms “quickly changed into several new norms,” which included oxygen support around the clock and a whole host of medical help in their home.
One week later, in a heartfelt post showing that she was surrounded by women caring for her swollen legs, Rohr announced she would be admitted to the hospital, ending with: “Every day is real grace “I am surrounded by absolute love. I miss nothing.”
She is an inspiration to many people and this week her friends wanted to make sure she knew that, and work to share her story far and wide.
Edmontonians have fallen in love with Julie, and so too, it seems, have several celebrities.
“Julie, Dan Levy here,” a video began a Monday post from the Canadian actor of the blockbuster comedy Schitt’s Creek.
“We are so glad you loved our show, we are so glad it brought you joy, and we are all – each of us – sending you so much love right now,” he said, blowing a kiss.
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His girlfriend Hannah Hamilton shook her head and shared a video on Twitter from the moment a speechless tube saw Levy’s post.
“That’s so nice, thank you for doing that,” Rohr said in tears after regaining her voice.
It was just the beginning.
Within hours, actor Ryan Reynolds had entered into the quarrel.
“I heard a little bit about your story, and one of the things that struck me about your story is that you are loved by so many people,” he said. Deadpool said the actor from Boston.
“Stay strong. Hope to see you in person one of these days.”
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The videos continued to arrive on Monday.
Canadian comedian and television personality Rick Mercer called over Rohr’s friends and followers.
“They must love you so much – I mean, they love you so much that they turned the whole Twitter verse around like that,” he said with a snap. “Who does that? I do not know.”
Actress Karen Robinson, another Schitt’s Creek Goss Member, sent her love to Rohr.
“You have some wonderful friends and I think that can not happen without you being a wonderful person,” she said.
“If God made you, she made it ok – she made it better than ok!”
Social media comedian and musician Stewart Reynolds, better known for his online handle Brittlestar, is also in attendance.
“These videos spread a lot of joy on the internet and that’s a wonderful thing to be able to do. So thank you for the opportunity to help spread some happiness and stay fantastic,” he said.
The phenomenon was not limited to Canadian celebrities.
American author and activist Glennon Doyle and her wife – retired footballer Abby Wambach – posted a video of their home in Florida on Monday night.
“We are sitting in our house, feeling as if every single one of our hearts is just with you in this minute, tonight. We just love you, we send every bit of strength and peace and love – love, love, love for you, said Doyle.
“You’re a damn horse. We love you.”
Rohr said she was pissed off by all the love in the videos, posted on Twitter, “I can not even say what they mean to me.”
The evening culminates with a 20-minute facetime session between Rohr, her husband and Canadian singer Chantal Kreviazuk.
The love affair continued on Tuesday, when Canadian broadcast legend Peter Mansbridge told Julie she was “powerful, courageous and resilient.”
“We are with you with our prayers and our thoughts, so stay strong.”
Edmonton Oiler Connor McDavid thanks her for everything she does for Edmonton.
“It’s really inspiring,” said the hockey superstar.
Comedian Colin Mochrie – self-proclaimed “Canada’s Dream Friend” – shared a few words of encouragement with Julie.
“I hope you know how much you are loved and admired and respected … you have inspired people to send this love and joy around the world,” he said.
“You are a rare and special person.”
More and more celebrities, politicians and athletes are joining on Tuesday and Wednesday:
It is perhaps a fitting tribute to a woman who first paid attention to many people before she even became ill.
In 2013, Rohr and her son Max started the “Fight a Monster Campaign” to raise money for another local family struggling with cancer.
They raised $ 13,000 to sell some of the Max drawings, with half to cancer research and half to the affected family.
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Now it’s Rohr and her family who need extra support – and at least this week, the internet has delivered.
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